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Tag: I/DD advocacy

  • October Advocacy Days: Shining a Light on Disability Awareness

    October advocacy days. Disability advocacy days.

    October is a month filled with opportunities to raise disability awareness, educate communities, and celebrate the incredible individuals and families we serve at Community Supports Network (CSN). Throughout the month, there are numerous observances dedicated to disabilities, health conditions, and inclusion — each one offering a chance to foster understanding and create positive change.

    At CSN, we believe advocacy is more than just awareness; it’s about taking action to ensure individuals with disabilities and their families feel supported, valued, and empowered.

    Month-Long Observances

    National Disability Employment Awareness Month (NDEAM)

    Established in 1945 and officially designated by Congress in 1988, NDEAM celebrates the many contributions of people with disabilities to the American workforce. It’s also a reminder of the importance of inclusive hiring practices and workplace accessibility.
    💡 How you can help:

    • Advocate for disability-inclusive hiring in your workplace.
    • Support businesses owned or operated by individuals with disabilities.

    Down Syndrome Awareness Month

    This month is dedicated to celebrating individuals with Down syndrome, raising awareness, and advocating for acceptance and opportunities. It’s a time to honor their talents, achievements, and the incredible value they bring to our communities.
    💛💙 How you can help:

    ADHD Awareness Month

    Focused on education and support for those living with Attention Deficit Hyperactivity Disorder (ADHD), this month encourages understanding of ADHD as a neurodevelopmental condition, not a character flaw.
    💡 How you can help:

    • Learn about ADHD-friendly strategies for work, school, and home.
    • Share resources with families navigating ADHD.

    Dyslexia Awareness Month

    Dyslexia affects how people read, write, and process language. This month promotes early intervention and understanding, helping children and adults reach their full potential through proper support.
    💡 How you can help:

    • Advocate for early screenings in schools.
    • Encourage schools to provide accessible learning tools and resources.

    Spina Bifida Awareness Month

    Spina bifida is a birth defect affecting the spine and spinal cord. This observance is dedicated to educating communities and sharing resources to improve quality of life for those living with the condition.
    💡 How you can help:

    • Share educational materials to raise awareness.
    • Support local organizations providing resources for families.

    Key Awareness Days

    • World Cerebral Palsy Day – October 6
      Celebrating individuals with cerebral palsy while promoting advocacy and inclusion worldwide.
    • World Mental Health Day – October 10
      Raising awareness about mental health and the importance of accessible, compassionate care for all.
    • World Sight Day – October 9th
      Highlighting the importance of eye health and access to vision care globally.
    • Blind Americans Equity Day (White Cane Safety Day) – October 15
      Recognizing the independence and mobility that white canes provide to individuals with blindness or low vision.
    • Invisible Disabilities Week – Mid-October (around October 19–25)
      A week dedicated to raising awareness about disabilities that aren’t immediately visible, like chronic illnesses or neurological conditions.

    Why These Days Matter:

    Each of these observances is more than just a date on the calendar — it’s an opportunity to:

    • Advocate for inclusion and accessibility.
    • Educate others about disabilities and health conditions.
    • Celebrate the achievements and contributions of individuals with disabilities.

    At CSN, we encourage everyone to take part in these important moments of awareness. Whether through sharing stories, attending local events, or simply having meaningful conversations, every action helps create a more inclusive world.

    Join the movement!

    This October, let’s come together to support individuals with disabilities and their families. By recognizing these observances, we can amplify voices, break down barriers, and make meaningful progress toward a future where everyone has the opportunity to thrive.

    💙 Together, we can turn awareness into action.

    Want to learn more? Head to www.yourcsn.com to connect!

    Written by Jessica Quarello, Brand Communications Manager

  • Connecting, Learning, and Growing at the DSDN Rockin’ Moms Retreat

    Mothers of children with Down syndrome pose together at a Down syndrome retreat event.

    This past weekend, our Brand Communications Manager, Jess, had the incredible opportunity to travel to Pine Mountain, Georgia, to attend the Down Syndrome Diagnosis Network (DSDN) Rockin’ Moms™ Retreat — an event that brings together mothers of children with Down syndrome from across the country for connection, education, and renewal.

    The Rockin’ Moms Retreat is held in a different location each year, giving families a chance to explore new places while finding strength in a community that truly understands their journey. This year’s retreat was hosted at the beautiful Callaway Resort and Convention Center, a serene backdrop for a weekend filled with meaningful moments.

    The Mission Behind the Retreat

    The DSDN’s mission is simple yet powerful:

    “To connect, support, and provide accurate information to parents — and the medical professionals who serve them — from the time of diagnosis through age three, while fostering the opportunity for lifelong connections.”

    This retreat embodies that mission. It’s not just a weekend getaway — it’s a lifeline for moms, especially those navigating the early years of parenting a child with Down syndrome. By offering a safe space to share stories, ask questions, and learn from experts, DSDN helps families feel seen, supported, and empowered.

    Highlights From the Weekend

    The retreat kicked off on Friday with check-in and a warm welcome from DSDN staff and volunteers. Attendees received swag bags filled with thoughtful goodies, setting the tone for the weekend ahead.

    Saturday was filled with programming designed to educate and inspire. The day began with the Medical Roundtable, a highly anticipated session where updated research and findings are shared with parents. This annual tradition ensures families leave with the latest information and resources to support their children’s health and development.

    After an informative morning, attendees enjoyed lunch with a breathtaking view, offering time to connect and reflect. These informal conversations are often where the deepest bonds are formed — moms sharing their personal stories, victories, and challenges with others who truly “get it.”

    Why Events Like This Matter

    For many families, especially those in the early stages of navigating a Down syndrome diagnosis, attending events like the Rockin’ Moms Retreat can be transformative. They provide:

    • Connection: A reminder that no one has to walk this path alone.
    • Education: Access to reliable, up-to-date information about health, development, and advocacy.
    • Empowerment: Tools and confidence to navigate challenges and celebrate milestones.

    As someone deeply committed to building inclusive, supportive communities, I left this weekend feeling inspired and grateful. It was a powerful reminder of why the work we do at Community Supports Network (CSN) matters so deeply. Our mission — to provide individualized care and resources for individuals with disabilities and their families — aligns beautifully with the vision DSDN brings to life each year through this event.

    Looking Ahead

    Returning home, I carry with me not just memories of a wonderful weekend but also renewed motivation to continue advocating for families and creating spaces where everyone feels supported and valued.

    To all the incredible moms I met: thank you for sharing your stories and your strength. And to DSDN: thank you for the work you do every day to ensure that families everywhere have access to connection, knowledge, and hope.

    Together, we are building a future where individuals with Down syndrome — and all individuals with disabilities — can thrive with our help. 💙💛

    Written by Jessica Quarello, Brand Communications Manager

  • Breaking Down Barriers: How Disability Services Work in New Jersey (A Family Guide)

    Navigating supports in New Jersey can feel like alphabet soup—NJEIS, CSOC, DDD, HCBS, NJCAT. Here’s a clear, step-by-step map of who to call, when to apply, and what to expect—from birth through adulthood.

    Birth–Age 3: Early Intervention (NJEIS)

    If you’re concerned about a child’s development before age 3, start with the New Jersey Early Intervention System (NJEIS). It’s the statewide program (run by NJ Department of Health) that evaluates and provides services for infants and toddlers with delays or disabilities. Families can self-refer; services typically end at the child’s third birthday.

    For children 3 and older, referrals typically shift to the local school district; families can also use Project Child Find (800-322-8174).

    Up to Age 21: Children’s System of Care (CSOC) / PerformCare

    For youth with intellectual/developmental disabilities (I/DD), mental health needs, or substance-use challenges, New Jersey’s Children’s System of Care (CSOC) is the public front door.
    PerformCare is the 24/7 single point of access for eligibility and service coordination under CSOC:
    📞 1-877-652-7624
    🌐 www.performcarenj.org

    Planning the Transition to Adulthood (Around 18–21)

    You can apply to the Division of Developmental Disabilities (DDD) at age 18, but DDD’s adult services start at 21 (while school-based services can continue through 21). Families should begin transition planning with the school IEP team and explore DDD eligibility well before the 21st birthday so services can start smoothly.
    Learn more: DDD Eligibility

    Age 21+: Division of Developmental Disabilities (DDD)

    DDD administers New Jersey’s Home and Community-Based Services (HCBS) for adults with I/DD via two Medicaid waiver programs:

    • Supports Program (SP): for adults living with family or independently in the community.
    • Community Care Program (CCP): includes options for licensed residential settings with additional clinical criteria.
      📘 Supports Program Manual

    Key Requirements & Steps

    1. Medicaid eligibility
      You must have NJ FamilyCare Medicaid to receive ongoing DDD services.
      NJ FamilyCare Info
    2. NJCAT assessment
      DDD uses the New Jersey Comprehensive Assessment Tool (NJCAT) to measure support needs in self-care, behavioral, and medical areas.
      NJCAT Overview
    3. Budgets by tier
      Your NJCAT score determines your tier and annual budget in the Supports Program.
      Budget Tier Table – Effective Jan 1, 2024
    4. Choose a Support Coordination Agency (SCA)
      Once eligible/enrolled, adults select a Support Coordination Agency. Support Coordinators help develop the Individualized Service Plan (ISP), locate providers, and make changes as needs evolve.
      Search for SCAs and Providers

    Self-Directed Options

    New Jersey offers Self-Directed Employee (SDE) models where individuals can hire their own staff and purchase certain approved services.
    Two models are available:

    • Vendor Fiscal/Employer Agent (VF/EA)
    • Agency With Choice (AWC)

    As of 2025, DDD is transitioning the VF/EA fiscal intermediary from PPL to Acumen, with staggered rollout through September 2025. Your Support Coordinator will guide you through model selection and enrollment.
    Self-Direction Resources

    How CSN Fits In

    • Navigation & planning: We help families prepare for key handoffs—Early Intervention → CSOC/PerformCare → DDD—so services don’t lapse.
    • Support Coordination: Once an adult enrolls with DDD, we work with support coordinators to provide this service that matches their NJCAT-based budget.
    • Self-direction support: We assist with setting up and maintaining self-directed services for long-term success.

    Quick Contacts (New Jersey)

  • What We Celebrate in September: Awareness, Inclusion, and Advocacy

    At Community Supports Network (CSN), we believe that every month offers an opportunity to amplify awareness, foster inclusion, and advocate for the rights and dignity of individuals with disabilities. September is especially meaningful, as it highlights several important observances that connect directly to our mission of empowering independence and building community.

    World Patient Safety Day — September 17

    This day emphasizes safer healthcare practices and the importance of reducing harm to patients. For people with disabilities, access to safe, responsive, and inclusive healthcare is essential. At CSN, we recognize the unique needs of the individuals we support and advocate for care systems that prioritize safety, dignity, and respect.

    World Alzheimer’s Day — September 21

    Alzheimer’s disease and other forms of dementia impact millions of families worldwide. On this day, we come together to raise awareness, support research, and stand by individuals and caregivers who navigate the challenges of memory loss. At CSN, we know that dignity in care is vital and that communities are stronger when we uplift one another.

    International Day of Sign Languages — September 23

    Language is power, and sign language is an essential tool for connection and inclusion. This day reminds us that communication should never be a barrier. We celebrate the richness of sign languages and the Deaf community, and we remain committed to fostering environments where every voice—spoken, signed, or supported—is heard and valued.

    National Non-Speaking/Nonverbal Awareness Day — September 30

    Not all communication looks the same. This observance advocates for individuals who are non-speaking or nonverbal, ensuring their voices are acknowledged and respected through alternative and augmentative communication methods. At CSN, we see daily how technology, creativity, and compassion help people express themselves fully.

    Limb Girdle Muscular Dystrophy Awareness Day — September 30

    Awareness of rare conditions, such as limb girdle muscular dystrophy, is vital for advancing research, building understanding, and supporting affected individuals and their families. By learning and sharing, we help strengthen communities and expand networks of care.

    Why These Days Matter

    Each of these observances shines a light on a different aspect of health, disability, and inclusion. For CSN, they are not just dates on the calendar — they are reminders of why we do what we do. Every day, we work to create environments where individuals feel empowered, supported, and able to live fulfilling lives.

    As we move through September, let’s carry forward the message that awareness leads to action, and action leads to change. Together, we can continue building communities that celebrate diversity, honor dignity, and prioritize inclusion.

    Written by Jess Quarello, Brand Communications Manager

  • Building Independence, One Step at a Time: The Impact of DSPs in Our Communities

    At Community Supports Network (CSN), our mission has always been clear: to provide the guidance, support, and encouragement that empower individuals with intellectual and developmental disabilities (I/DD) to live as independently and fully as possible.

    A cornerstone of that mission lies in the dedication and expertise of our Direct Support Professionals (DSPs) — the compassionate individuals who work every day to turn independence from a goal into a reality.

    Why Independence Matters

    For individuals with I/DD, independence looks different for everyone. It may mean learning how to prepare a favorite meal, managing personal schedules, or making choices about daily routines. These small but significant steps create confidence, foster self-reliance, and open the door to fuller participation in community life.

    The Role of a DSP in Daily Living Skills

    Our DSPs are more than caregivers — they are coaches, advocates, and partners in growth. Whether it’s encouraging choice-making, practicing new skills one step at a time, or introducing tools like visual schedules, DSPs help bridge the gap between support and self-sufficiency.

    The best part? Every achievement, no matter how small, is celebrated. Because progress isn’t measured only by milestones, but by moments of empowerment.

    Tip Tuesday: Learning from the Experts

    This month, we’ve launched our Tip Tuesday series, gathering advice directly from our DSPs on different aspects of daily living. Each week, we’ll highlight a new theme — from household management to social skills — sharing practical tips and strategies that families, caregivers, and advocates can use to support independence at home and in the community.

    A Community Effort

    While DSPs are on the frontlines, independence is nurtured through collaboration — between individuals, families, and our team. Together, we can create environments that promote choice, encourage growth, and celebrate individuality.

    At CSN, we are proud to be part of each person’s journey toward living a life filled with dignity, self-determination, and joy.


    💬 Follow along with our Tip Tuesday series and share your own strategies in the comments. Together, we can keep building a more inclusive, empowered community.

    ⮚ Interested in a career as a DSP? Check out our DSP jobs page for more information!

  • Delivering Access, Advocacy & Connections Within Our Community

    The week of August 3rd though 9th is National Health Center Week, which gives us the opportunity to note a very important aspect of what we do here at CSN: improving quality of life, removing barriers to essential services, and ensuring that every person is treated with dignity and respect.

    Because this is such a central part of what we do, we felt it worthwhile to publish a post about this topic on LinkedIn, please be sure to have a look! In that post we explain how our company and team members connect our clients with the world of healthcare as part of our service portfolio, even though we are not formally a healthcare company. Rather, our services are complementary to medical care facilities, as we are a DDD-approved provider of support for adults with intellectual and developmental disabilities.

    Apart from what we published in that post, the importance of access to quality care of any type, such as individual supports, behavioral counseling, bringing clients to medical appointments, and much more, is something that we recognize as key part of our mission at CSN. Our Direct Support Professionals and management team members take this to heart in everything that we do, and our clients love our 100-percent engagement on this!

Serving Morris, Passaic, Bergen, Essex, Hudson, Union, Warren, Somerset, Hunterdon & Sussex Counties