Celebrating DSAM with Our Very Own CSN Family
October is a month filled with advocacy and awareness days to celebrate, and one of them is Down Syndrome Awareness Month (DSAM).
My name is Jessica Quarello, and as the Brand Communications Manager at Community Supports Network (CSN) and, as a mom to my 5-year-old daughter Adeline, this month holds a special place in my heart. It’s an opportunity to reflect on how far we’ve come, to educate others, and to celebrate the incredible individuals who make the world brighter just by being in it.
What Down Syndrome Awareness Month Means to Me
When Adeline was born, I entered a world I knew very little about — one filled with medical terms, therapy appointments, and questions about what the future would hold. But five years later, I can confidently say that what I once feared has become one of the greatest joys of my life.
Down syndrome is not something that defines Adeline — it’s simply one part of who she is. She’s curious, funny, gentle, stubborn, and full of life. She adores music, her big sister Charlee, and has a smile that lights up every room she walks into.
She taught me that milestones don’t have to happen on a certain timeline to be worth celebrating, and that inclusion isn’t just a word — it’s a way of life. Every time someone sees her for exactly who she is, not just her diagnosis, it reminds me of how far our communities have come — and how much farther we can still go.
Understanding Down Syndrome
Down syndrome is a genetic condition caused by the presence of an extra copy of chromosome 21. It’s the most common chromosomal condition, occurring in about 1 in every 775 babies born in the United States each year. (NDSS, n.d., “Facts, Myths & Truths About Down Syndrome“)
While individuals with Down syndrome may share some physical traits or experience varying levels of developmental delay, each person is beautifully unique. They have their own personalities, talents, and dreams — just like anyone else.
With early intervention, inclusive education, and access to community-based support, individuals with Down syndrome can thrive in school, build friendships, pursue careers, and lead fulfilling, independent lives.
Beyond Awareness: Building a Culture of Inclusion
For me, Down Syndrome Awareness Month isn’t just about awareness — it’s about action. It’s about challenging assumptions, amplifying voices, and celebrating the fact that people with Down syndrome make our communities stronger, more compassionate, and more vibrant.
That belief is what led me to co-found Extra Lucky Moms, a platform dedicated to celebrating disability and reminding families that they are never alone. What started as a small Instagram page has grown into a nationwide community of parents, advocates, and allies — all sharing stories that shift perspectives and promote inclusion.
Through Extra Lucky Moms, I’ve witnessed the incredible power of storytelling. Every shared experience — every challenge, every victory, every moment of joy — reminds others that difference is something to be embraced, not feared.
That same spirit of inclusion is what drives us at Community Supports Network. From the way we communicate to the way we design our programs, CSN is committed to empowering individuals with disabilities and their families through compassion, connection, and opportunity. We know that inclusion doesn’t happen by chance — it happens through intention.
This month, I encourage everyone to take a moment to learn, listen, and engage. Ask questions. Share stories. See the beauty in differences.
What Adeline Has Taught Me
Adeline has reshaped the way I see the world. She taught me patience, perspective, and the importance of celebrating small victories. She showed me that progress isn’t always linear — and that sometimes the most meaningful growth happens in quiet, beautiful moments.
Most importantly, she taught me that love isn’t measured by milestones. It is found in connections, in laughter, in hugs, and in countless reminders that every single person — regardless of ability — belongs.
Learn More & Get Involved
If this month has inspired you to learn more about Down syndrome or how you can be part of creating a more inclusive world, there are so many wonderful ways to start.
At Community Supports Network (CSN), we’re proud to partner with families of children and adults with disabilities across New Jersey. Our mission is to empower individuals through compassion, respect, and individualized support — helping every person live a full, meaningful life in their community.
If you’re raising a child or supporting an adult with Down syndrome and are looking for guidance, programs, or community-based services, don’t hesitate to reach out to CSN. Our team is here to help you navigate available supports, connect with resources, and build a plan that fits your family’s needs.
To learn more about Down syndrome, I also encourage you to visit:
- Down Syndrome Diagnosis Network (DSDN) – offering connection and guidance for new and expectant parents.
- National Down Syndrome Congress (NDSC) – a national leader in advocacy, education, and inclusion.
And if you’re a parent, caregiver, or ally seeking inspiration and community, visit Extra Lucky Moms — the platform I co-founded to celebrate the beauty in every kind of “extra.” 💙💛
Together, we can continue to build a world where every individual — regardless of ability — is valued, supported, and included.
Written by:
Jess Quarello
Brand Communications Manager, Community Supports Network
Co-founder, Extra Lucky Moms
Proud mom to Charlee & Adeline 💙💛
