Tag: moms coping with DS

  • Connecting, Learning, and Growing at the DSDN Rockin’ Moms Retreat

    Mothers of children with Down syndrome pose together at a Down syndrome retreat event.

    This past weekend, our Brand Communications Manager, Jess, had the incredible opportunity to travel to Pine Mountain, Georgia, to attend the Down Syndrome Diagnosis Network (DSDN) Rockin’ Moms™ Retreat — an event that brings together mothers of children with Down syndrome from across the country for connection, education, and renewal.

    The Rockin’ Moms Retreat is held in a different location each year, giving families a chance to explore new places while finding strength in a community that truly understands their journey. This year’s retreat was hosted at the beautiful Callaway Resort and Convention Center, a serene backdrop for a weekend filled with meaningful moments.

    The Mission Behind the Retreat

    The DSDN’s mission is simple yet powerful:

    “To connect, support, and provide accurate information to parents — and the medical professionals who serve them — from the time of diagnosis through age three, while fostering the opportunity for lifelong connections.”

    This retreat embodies that mission. It’s not just a weekend getaway — it’s a lifeline for moms, especially those navigating the early years of parenting a child with Down syndrome. By offering a safe space to share stories, ask questions, and learn from experts, DSDN helps families feel seen, supported, and empowered.

    Highlights From the Weekend

    The retreat kicked off on Friday with check-in and a warm welcome from DSDN staff and volunteers. Attendees received swag bags filled with thoughtful goodies, setting the tone for the weekend ahead.

    Saturday was filled with programming designed to educate and inspire. The day began with the Medical Roundtable, a highly anticipated session where updated research and findings are shared with parents. This annual tradition ensures families leave with the latest information and resources to support their children’s health and development.

    After an informative morning, attendees enjoyed lunch with a breathtaking view, offering time to connect and reflect. These informal conversations are often where the deepest bonds are formed — moms sharing their personal stories, victories, and challenges with others who truly “get it.”

    Why Events Like This Matter

    For many families, especially those in the early stages of navigating a Down syndrome diagnosis, attending events like the Rockin’ Moms Retreat can be transformative. They provide:

    • Connection: A reminder that no one has to walk this path alone.
    • Education: Access to reliable, up-to-date information about health, development, and advocacy.
    • Empowerment: Tools and confidence to navigate challenges and celebrate milestones.

    As someone deeply committed to building inclusive, supportive communities, I left this weekend feeling inspired and grateful. It was a powerful reminder of why the work we do at Community Supports Network (CSN) matters so deeply. Our mission — to provide individualized care and resources for individuals with disabilities and their families — aligns beautifully with the vision DSDN brings to life each year through this event.

    Looking Ahead

    Returning home, I carry with me not just memories of a wonderful weekend but also renewed motivation to continue advocating for families and creating spaces where everyone feels supported and valued.

    To all the incredible moms I met: thank you for sharing your stories and your strength. And to DSDN: thank you for the work you do every day to ensure that families everywhere have access to connection, knowledge, and hope.

    Together, we are building a future where individuals with Down syndrome — and all individuals with disabilities — can thrive with our help. 💙💛

    Written by Jessica Quarello, Brand Communications Manager

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